Jesy Nelson shares clip of daughter with a feeding tube

Jesy Nelson posted a short video of one of her twin daughters using a feeding tube after the family revealed both daughters had been diagnosed with spinal muscular atrophy (SMA1).

Jesy Nelson has posted a short Instagram clip showing one of her twin daughters laughing while using a feeding tube. The singer and her fiancé previously announced that their daughters, Ocean Jade and Story Monroe, were diagnosed with spinal muscular atrophy type 1 (SMA1) following several difficult months. Nelson has described changes to life at home and the medical supports the family now relies on. She has also said she wants to raise awareness and has submitted a petition about newborn screening for SMA. Key points: - Nelson shared a brief video of one twin appearing happy while receiving feeding support, as reported. - Both daughters were diagnosed with spinal muscular atrophy (SMA1) after a period the family described as particularly difficult. - The family is using medical supports at home, including nighttime breathing support for one child and respiratory and feeding aids. - Nelson has filed a petition seeking newborn screening for SMA and has spoken publicly to raise awareness. Summary: Jesy Nelson's post highlights the twins' recent SMA1 diagnosis and the medical care they are receiving at home. She has made the situation public to raise awareness and has put a petition forward about newborn screening for SMA. Undetermined at this time.