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Jesy Nelson says twin daughters may never walk after SMA diagnosis
Summary
Jesy Nelson said her eight-month-old twin daughters have been diagnosed with Spinal Muscular Atrophy Type 1 and have begun treatment at Great Ormond Street Hospital; doctors said the girls will probably be unable to walk.
Content
Jesy Nelson has said her eight-month-old twin daughters were diagnosed with Spinal Muscular Atrophy (SMA) Type 1. The twins, Ocean Jade and Story Monroe, were born at 31 weeks and spent time in neonatal care. Nelson said doctors at Great Ormond Street Hospital advised the girls are probably unlikely to walk or regain full neck strength. The family has begun a treatment plan at Great Ormond Street Hospital.
Key facts:
- The girls were diagnosed with Spinal Muscular Atrophy (SMA) Type 1.
- Medical staff at Great Ormond Street Hospital advised they are probably unlikely to walk or regain full neck strength.
- The twins have started a treatment plan at Great Ormond Street Hospital.
- SMA is a genetic neuromuscular condition; approved treatments can stop its progression if given very early, but there is no cure.
Summary:
Doctors said the diagnosis means the twins are likely to face significant long-term physical disability, and the family has begun treatment at Great Ormond Street Hospital. Undetermined at this time.
Sources
Watch: Jesy Nelson reveals 'most frustrating' part of daughters' 'life-changing' diagnosis
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Jesy Nelson reveals twin daughters may never walk again after being diagnosed with devastating muscular disease
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