Zion Foster Shares Poem About His Daughters After SMA Diagnosis

Zion Foster posted a video reading a poem for his twin daughters after they were diagnosed with spinal muscular atrophy, and Jesy Nelson said doctors told them the girls may never walk.

Jesy Nelson and her fiancé Zion Foster are speaking publicly after their infant twin daughters were diagnosed with a rare neuromuscular condition. The twins, Ocean Jade and Story Monroe, were born in May 2025 at 31 weeks and have since been diagnosed with spinal muscular atrophy (SMA). Foster shared a video on Jan. 14 in which he reads a poem for the girls and, in a caption, urged newborn testing for SMA in the U.K. Nelson announced the diagnosis earlier in January and said doctors recommended immediate treatment. Key points: - The twins, named Ocean Jade and Story Monroe, were born in May 2025 and arrived prematurely at about 31 weeks. - The children were diagnosed with spinal muscular atrophy (reported as SMA Type 1), and Nelson said doctors told the parents the girls may not be able to walk and would need treatment. - Zion Foster posted a video of himself reading a poem for the twins on Jan. 14 and thanked the SMA community for support. He also called for newborn screening for SMA in the U.K. in his caption. - The parents noticed reduced leg movement and feeding difficulties after discharge from the neonatal unit and sought medical care; they reported being advised to begin treatment promptly. Summary: The family has shared personal accounts of the diagnosis and their emotional response, and Foster used his post to both read a poem and raise the issue of newborn screening for SMA. Parents said treatment began or was recommended immediately; longer-term outcomes were reported as uncertain and undetermined at this time.