Philadelphia-area family raises awareness about rare condition that prevents their son from smiling

A Bucks County family is publicizing Moebius syndrome after their four-year-old son, Jackson Roberts, was born with facial paralysis; the family asked the community to light buildings purple around Jan. 24 for Moebius Syndrome Awareness Day.

Four-year-old Jackson Roberts of Chalfont in Bucks County was born with Moebius syndrome, a rare neurological disorder that affects nerves in the face. Doctors say the condition has left him unable to smile on his own and can affect blinking, swallowing and speech. His parents, Trish and Chris Roberts, have pursued therapy and public awareness efforts. The family asked local buildings to light purple around Jan. 24, Moebius Syndrome Awareness Day. Key facts: - Jackson Roberts is four years old and has Moebius syndrome, described as paralysis of the facial nerves. - Moebius syndrome is very rare, reported at about 1 in 4 million, and is reported to have no known treatment or definitive cause. - The Roberts family has used therapy and community outreach, including shirts and a request for purple lighting, to raise awareness. Summary: The family's outreach has drawn local support and attention to a rare condition with limited research. The immediate public step reported is the planned purple lighting for Moebius Syndrome Awareness Day on Jan. 24.