Eddie Vedder and Jill Vedder are funding research for children with EB

The Vedders' EB Research Partnership has raised more than $80 million and supported research that helped lead to recent FDA approvals and dozens of clinical trials, a story chronicled in the new documentary Matter of Time.

Eddie Vedder and his wife Jill have spent the past 15 years supporting research into epidermolysis bullosa through the EB Research Partnership. The foundation grew from small events into a major funder of scientific work, and a new documentary, Matter of Time, documents that effort and its impact on families. The film includes footage from Vedder's 2023 solo concerts and follows patients and parents living with EB. Recent scientific milestones reported in the piece include new therapies and ongoing clinical trials. Key facts: - The EB Research Partnership was launched in 2010 and has raised more than $80 million, funding about 180 research projects. - More than 40 clinical trials are reported to be underway, and the article notes there are now three FDA-approved therapies for EB compared with none when the charity began. - In April 2025 the FDA approved Zevaskyn, a cell-based gene therapy built on Stanford research that the foundation helped fund. - Matter of Time, released on Netflix, combines concert footage with scenes of families managing daily care and shows the foundation's engagement with scientists and clinics. Summary: The Vedders' long-term involvement has helped expand research activity and contributed to treatment approvals while keeping families visible in the public record. The foundation continues to fund studies and support ongoing clinical trials; timelines for a complete cure are not specified.